Research

Dr. Yves Saint James Aquino

Doctor and philosopher of medicine, ethicist, social scientist

I examine a broad range of philosophical and ethical issues raised by artificial intelligence and big data in healthcare applications (such as diagnosis and screening). These issues include algorithmic bias, data inequities, data diversity, deskilling, and ethical governance of AI-related research.

This research builds on my PhD project that developed an innovative critique of body modification by focusing on the practice of pathologising ugliness, which is the process of framing physically unattractive features as medical disorders or deformities, thereby justifying surgical or medical interventions as therapy rather than enhancement. This research draws on clinical ethics, ethics of cosmetic surgery, ethics of enhancement, and philosophy of medicine. Specific case studies include Asian cosmetic surgery, cosmetic surgery regulation, and beauty apps.

This research offers a critical approach to examining contemporary issues in public health ethics (overdiagnosis, pandemic, resource allocation, social justice), and research ethics and governance (research ethics committees, publication ethics, consent). This research draws on my current role as the Editor in Chief of Research Ethics (Sage), and as a member of Bellberry Ltd‘s Human Research Ethics Committee.

Empirical bioethics is an approach that combines traditional philosophical analysis and social science research methods to study bioethical issues (1). These research methods include qualitative research methodologies such as focus groups and in-depth interviews. I’ve conducted interview studies, focus groups, and citizens’ juries.

ELSI, which stands for “ethical, legal and social implications” (or “issues”), is an approach to ethical examination of novel and emerging biomedical research, practice or technology (2). I have applied the ELSI approach to examine the ethics of AI and big data, ethics of using genomics for newborn screening, and ethics of cosmetic surgery.

Experimental philosophy combines traditional philosophical analysis and methods associated with contemporary cognitive science, including systematic experimentation and statistical analysis (3).

Photo by Jon Tyson on Unsplash

As a philosopher, I’m trained in traditional analytical methods in philosophy, including armchair analysis, conceptual analysis, and thought experiments (4). I’ve used philosophical analysis to examine the practice of pathologising ugliness, drawing on the naturalist and normavtivist definitions of health and disease.

I have been involved in multi-method empirical bioethics projects that use qualitative research methods to examine issues in healthcare artificial intelligence, genomics, public health programs and other emerging issues. I have led or co-led interview studies, focus groups, survey studies. 

These methods draw on deliberative democracy, a political ideal where ‘people come together on the basis of equal status and mutual respect, to discuss the political issues they face, and, on the basis of those discussions, decide on the policies that will then affect their lives’ (5). Deliberative democratic practices are practical applications of these ideals (6). I have been trained in conducting citizens’ juries using the hybrid method developed by my mentor Prof Stacy Carter (7).

StatusResearch activityOutputs
Ongoing data collectionI’m leading an interview study with chairs of human research ethics committees about the use of general practice data for research
Ongoing data collectionI’m leading a systematic review of governance of AI-related research
Ongoing data collectionI’m co-leading a systematic review of the use of deliberative research methodologies in healthcare
Publication under reviewI co-led a national citizens’ jury on the use of genomics for newborn bloodspot screening– Peer-reviewed article currently under review
– Policy brief sent to policymakers
– Full report in development